mito action

our story

For 16 years, MitoAction has transformed the lives of families affected by mitochondrial disease. Our mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, clinical research initiatives and by granting wishes for children affected by mitochondrial disease.

Some of MitoAction’s programs include our Mito411 Helpline which provides live, one-on-one support, weekly support groups, live education events, MitoSocials which connect families in their local community, Matthew Harty Scholarship Fund for college-aged students affected by mitochondrial disease, Marcel's Way Family Fund which provides support to ease the financial burden of disease, Monthly Expert Series which gives the community direct access to experts in the field of mitochondrial medicine, MitoSantas which provides holiday gifts for children with mitochondrial disease and their siblings, Matthew Harty Camper Fund which sends children with mitochondria disease to summer camp, our website which provides significant educational resources for the community, Energy in Action, our weekly podcast, and MitoAction Mobile which provides a platform for families to manage their disease journey and capture the mito lifestyle, while helping provide critical information to clinicians and researchers about the natural history of this disease.

Committed to making the largest impact possible, MitoAction serves individuals in the U.S. and across the globe. The programs and services MitoAction provides continue to be a lifeline for families impacted by mitochondrial disease. Families know with MitoAction, they will never be alone on this difficult journey.